Living with a Brain Tumour: 3 Coping Strategies and Support Resources

A brain tumor is an abnormal mass or growth of cells in the brain. It can develop in various parts of the brain or surrounding tissues and can be either cancerous (malignant) or non-cancerous (benign). Brain tumors can affect people of all ages, from children to older adults.

These tumors can arise from different types of cells within the brain, such as glial cells, which provide support and nourishment to neurons, or from other structures within the brain, such as blood vessels. The exact cause of most brain tumors is still unknown. Still, certain risk factors, such as exposure to radiation, a family history of brain tumors, and certain genetic conditions, may increase the likelihood of developing them.

The symptoms of a brain tumor can vary depending on its size, location, and growth rate. Common symptoms may include persistent headaches, seizures, changes in vision, difficulty speaking or understanding, impaired coordination or balance, personality changes, and cognitive problems. However, it’s important to note that other conditions can also cause these symptoms, and these symptoms do not necessarily indicate the presence of a brain tumor.

• Seek Emotional Support:

Support Groups: Joining a support group can provide a safe space to share your experiences, emotions, and challenges with others who are going through a similar situation. The Indian Cancer Society (https://www.indiancancersociety.org/) offers support groups for cancer patients, including those with brain tumors.

Counseling and Therapy: Consider seeking professional counseling or therapy to help you cope with the emotional impact of living with a brain tumor. The Indian Association of Clinical Psychologists (https://www.iacp.org.in/) provides a directory of licensed psychologists and mental health professionals in India.

• Educate Yourself:

Reliable Information Sources: Educate yourself about brain tumors, treatment options, and potential side effects. Trustworthy sources of information include medical websites like the All India Institute of Medical Sciences (https://www.aiims.edu/) and the Tata Memorial Centre (https://tmc.gov.in/).

Books and Publications: Reading books written by medical professionals or individuals who have experienced a brain tumor can provide valuable insights and coping strategies. One such book is “When Breath Becomes Air” by Dr. Paul Kalanithi.

• Practice Self-Care:

Mindfulness and Meditation: Engaging in mindfulness practices and meditation can help reduce stress, improve mental well-being, and enhance overall quality of life. The Art of Living Foundation (https://www.artofliving.org/in-en) offers courses and resources on mindfulness and meditation techniques.

Physical Activity: Engage in regular physical activity that suits your abilities and preferences. Consult with your healthcare team to determine appropriate exercises and activities.

Healthy Lifestyle: Adopting a healthy lifestyle, including a balanced diet, adequate sleep, and avoiding harmful habits like smoking and excessive alcohol consumption, can contribute to your overall well-being.

The Indian Cancer Society (ICS): The ICS is a non-profit organization that provides support and resources for cancer patients in India, including those with brain tumors. 

Neuro-oncology Departments in Hospitals: Many hospitals in India have specialized neuro-oncology departments that provide comprehensive care for patients with brain tumors. These departments often have dedicated teams of neurologists, neurosurgeons, radiation oncologists, and other healthcare professionals specializing in treating brain tumors. 

All India Institute of Medical Sciences (AIIMS): AIIMS is a premier medical institution in India with departments dedicated to neuro-oncology. They offer advanced diagnostic services, treatment options, and access to clinical trials for brain tumor patients.